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Time now for StoryCorps.
This oral history project is traveling the country, collecting interviews between friends and families. Today we hear from a daughter and her father.
--My name is David Warm, I'm 51 years old.
--My name is Mary Warm, and I'm here with my father.
Mary Warm is 15 years old and is in the seventh grade. She thought a StoryCorps conversation would help other kids who also have Down Syndrome1. So when the project stopped in Kansas City near their home, Mary and her father David came into talk.
--Mary, who was the, who's the most important person in your life?
--My sister, I really look up to her. And she's a great person, no matter her room is messy.
Do you remember when you were young, and on Friday nights you, and your sister and I would dance in the living-room. We'd take out the coffee table, we'd turn up the music and we'd get on our backs and be like bugs2.
--Yeah.
--Is there something about me that you've always wanted to know but you never asked me?
--Yes, Dad. How did you feel when I was born and how did mom feel?
--Well, that's a complicated question. Ah, we did know we are going to have a little girl, so that's the first thing we thought. We were really pleased to have another little girl, and then when we learned that you had Down Syndrome. I think we both decided3 that we had to figure it all out and so we went to classes and we read books, and we talked to other people. But about 2 months later, I think we’ve just kinda relaxed and realized we just needed to raise you of love, and teach you like we did to your big sister and everything will turn out all right. En, I think it has .
--Ah, you tell me I'm special all the time, what makes me special?
--Well, there is a lot of things that are special about you. En, you know your mom and I, we both really admire you because you are so positive, because you work really hard for everything that you get, and you go out your way to make sure that everybody is doing OK, not everybody is like that. In fact, I told somebody just the other day that I want to be more like my daughter Mary when I grow up. Do you have other questions?
--No, I don't. But do you?
--Back to me, ha~ What one thing about me upsets you, I'm not sure I wanted to ask . HAHA~~
--Er, if you like tell me exactly what to do.
--So you don't like it when I raise my voice. (Yeah)Are there some things you want to ask me about you?
--Yes, what is your goal for me?
--What is your mom and my goal for you?
--Yes.
--Well, I hope most of all that you keep your sunny personality no matter what you do, and I hope you find somebody you love and, and have a family, er, in whatever way you have a family. And we are really looking forward to getting to know you as an adult because you've been such a great kid.
--Thanks.
Mary Warm with her father David at StoryCorps. This conversation and all StoryCorps interviews are housed at the American Folklife Center at the library of Congress. Find out how to record your story at npr.org.
Major funding for StoryCorps comes from the Corporation for public broadcasting.
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Down Syndrome
A congenital disorder4, caused by the presence of an extra 21st chromosome5, in which the affected6 person has mild to moderate mental retardation7, short stature8, and a flattened9 facial profile.Also called trisomy 21
唐氏综合征,蒙古症:由于多出一个染色体引起的一种先天疾病,患者有轻至中度智障,身体矮小,脸扁平也作 trisomy 21
1 syndrome | |
n.综合病症;并存特性 | |
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2 bugs | |
adj.疯狂的,发疯的n.窃听器( bug的名词复数 );病菌;虫子;[计算机](制作软件程序所产生的意料不到的)错误 | |
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3 decided | |
adj.决定了的,坚决的;明显的,明确的 | |
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4 disorder | |
n.紊乱,混乱;骚动,骚乱;疾病,失调 | |
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5 chromosome | |
n.染色体 | |
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6 affected | |
adj.不自然的,假装的 | |
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7 retardation | |
n.智力迟钝,精神发育迟缓 | |
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8 stature | |
n.(高度)水平,(高度)境界,身高,身材 | |
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9 flattened | |
[医](水)平扁的,弄平的 | |
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