西部落：上帝,请再给我一个月的"有声世界"

Woman's Choice: Hearing or Life? 给我一个月的“有声世界”

To save her life, Jessica Stone had to lose her hearing.

Now to the inpiring story that a young woman faced with a difficult diagnosis¹. The surgery she needed to save her life would cause her to lose her hearing forever. So how would you spend your last days being able to hear the world? Jessica Stone did it with bravery and grace.

Imagine a symphony of sounds that make up your life, your favourite song, your family's laughter, you dog. Now imagine counting down the weeks, days, hours until every sound disappears.

I'm really at a loss for emotion, freak out at it. To be very blunt, freak out.

Surgery has been a fact of life for 23-year-old Jessica Stone since she was a little girl. But it wasn't until she was 15 that doctors were able to put a name to her disease neurofibromatosis, a rare genetic² disorder³ that causes benign⁴ tumors to grow along her nervous system.

The diagnosis was, you know, pretty much like a kicking of god.

Over the years Jessica has had more than 20 surgeries to remove the tumors.

Since this whole thing started eighy years ago, I wanna crawl up , a lot of days in crying and I can't because, I can't do it because she doesn't do it.

Her humors always found ways to make her through and she is a beautiful person inside and out.

She already lost the hearing in her left ear and then this went her devastating⁶ news, there is a tumor⁵ pressing against her brain stem that has to come out. And the operation that will heal her will also leave her deaf.

You do a surgery that will leave you completely deaf or you take the risk of just stroking one day and dying. And that was her choice.

The deafness thing, I will only, I will find some funky⁷, corky way to make it work for me, to , you know be the, the person in the family that just like, wow, you know, she's deaf but she juts⁸ does it so well!

Today marks thirty days in count of my big surgery. . And so in the month before surgery, Jessica sets out to record the sounds that make up her world.

Dig, Doby, dig a hole. . .

Playing her bongos, making her morning smoothy. The hope is one day these images will remind her of the sounds she can on longer hear.

She practices her sign language by learning to sign her favourite song"All We Are" by Matt Nathanson.

Just three weeks before surgery she gets to meet Nathanson at his concert, the last one she will ever hear.

On one hand it's great to meet the person , on the other hand, you know, I have never gonna hear him sing again so , you know it was a definitely emotional thing last night.

With one week left she takes in the gentle warm wind and wave on the beach.

Oh it's gorgeous, it is good to know the waves. .

And then all too soon the day of surgery is here.

It has been a long 30 days and, yeah, very long very. hard.

We talked and laughed and all kinds of things of before, we wanted to get every minute and you know nobody wanted to go to bed and then all of a sudden it's 6 a. m. and you're in the hospital.

That morning in the hospital, tense of emotional moments, one last conversation.

I love you. A final "I love you" and listening one last time to her favourite song as she is wheeled into the operating room.

After 13 hours of surgery relief, doctosr tell Jessica's family the tumor is out and she is doing well. But next morning the new reality. Jessica's first conversation without sound.

1 diagnosis   

n.诊断，诊断结果，调查分析，判断

参考例句：

• His symptoms gave no obvious pointer to a possible diagnosis.他的症状无法作出明确的诊断。
• The engineer made a complete diagnosis of the bridge's collapse.工程师对桥的倒塌做一次彻底的调查分析。

2 genetic   

adj.遗传的，遗传学的

参考例句：

• It's very difficult to treat genetic diseases.遗传性疾病治疗起来很困难。
• Each daughter cell can receive a full complement of the genetic information.每个子细胞可以收到遗传信息的一个完全补偿物。

3 disorder   

n.紊乱，混乱；骚动，骚乱；疾病，失调

参考例句：

• When returning back,he discovered the room to be in disorder.回家后，他发现屋子里乱七八糟。
• It contained a vast number of letters in great disorder.里面七零八落地装着许多信件。

4 benign   

adj.善良的，慈祥的；良性的，无危险的

参考例句：

• The benign weather brought North America a bumper crop.温和的气候给北美带来大丰收。
• Martha is a benign old lady.玛莎是个仁慈的老妇人。

5 tumor   

n.（肿）瘤，肿块(英)tumour

参考例句：

• He was died of a malignant tumor.他死于恶性肿瘤。
• The surgeons irradiated the tumor.外科医生用X射线照射那个肿瘤。

6 devastating   

adj.毁灭性的，令人震惊的，强有力的

参考例句：

• It is the most devastating storm in 20 years.这是20年来破坏性最大的风暴。
• Affairs do have a devastating effect on marriages.婚外情确实会对婚姻造成毁灭性的影响。

7 funky   

adj.畏缩的，怯懦的，霉臭的；adj.新式的，时髦的

参考例句：

• The kitchen smelled really funky.这个厨房有一股霉味。
• It is a funky restaurant with very interesting art on the walls.那是一家墙上挂着很有意思的绘画的新潮餐馆。

8 juts   

v.（使）突出( jut的第三人称单数 )；伸出；（从…）突出；高出

参考例句：

• A small section of rock juts out into the harbour. 山岩的一小角突入港湾。 来自辞典例句
• The balcony juts out over the swimming pool. 阳台伸出在游泳池上方。 来自辞典例句